Team Joel 2013

Tuesday, June 18, 2013

Last year we participated in Seattle's Step Forward to Cure TSC walkathon. It was our first time walking as Team Joel. Thanks to family and friends we were able to raise $1,235! We never imagined we would be able to raise that much in donations. We were blown away by the support!

This year we will be participating in Ohio's Step Forward walkathon. We have been trying to fundraise for a few months in between moving across the country. It has been stressful at times, but it's so worth it to help this great cause. 

Last year I got word that people were saying they would not donate because it wouldn't help Joel directly. I don't know where they got that information, but it's false. Every dollar raised for TSC research helps Joel directly! The research is not only to hopefully find a cure for tuberous sclerosis complex but to also find better treatments for those suffering with this horrible disease. The scary reality of TSC is that it can change at any moment. I cannot stress how important this research is!! If it wasn't important I wouldn't be begging everyone and their mama to support us. I would have stayed home back in February instead of leaving my baby for the first time ever just so I could speak to legislative health aides on Capitol Hill.

When I went on my DC trip I learned so much about TSC research. For instances, I learned that the TSC research is also helping to unlock doors for autism, epilepsy, cancer, and even traumatic brain injuries. Amazing right? 

One thing is for sure, I will not stop begging people to donate (even a $1.00!!) to support this research until a cure is found. I'm praying the cure will be found within our lifetime! If we don't advocate, who will?

You (yes, you reading this!) can help us raise awareness about tuberous sclerosis by sharing our story with everyone you know! You can also help by sharing our team page so people can sponsor Team Joel. Every bit of support is greatly appreciated! :-)


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