I'm Back, and I Need Prayers For My Baby!!

Saturday, September 24, 2011

A couple months ago I lost all the pictures on my blog. I'm not sure what happened but it seriously made me want to cry (let's just blame those terrible postpartum hormones ok?), and that's when I realized I needed a break from blogging. It had become just another stressor in my life instead of a fun outlet for me.

I still haven't recovered all the pictures, but I got over it. There are more important things in life to worry about. Like my precious seven month old son for example...

Joel was born with linear epidermal nevus on his right arm/shoulder. I never mentioned it because we didn't know much about it until recently. Our pediatrician didn't have a clue what it was so he sent us straight to a specialist. We were told that his case was very mild, he shouldn't have any problems, and it's mostly a cosmetic thing.

Well, last Thursday Joel started doing a weird head nodding thing. He would drop his head down and then quickly bring it back up. It freaked us out but we thought maybe he was just super tired because it was past his nap time. The next day he did it again so I called a nurse. She suggested we bring him in to see the doctor. We took him to see the pediatrician on Tuesday, the 20th. He wasn't 100% sure what was going on. He didn't think it was serious because Joel was staying alert during the little episodes. But since Joel has the epidermal nevus he decided to consult with the specialist to see if it could cause what he was doing. Turned out it could, so they sent us to the big city for an EEG on Thursday, the 22nd.

His EEG went well but it showed some abnormal brain waves. We had a consult with two neurologist right after his test, and they seem to think he is having seizures because of the epidermal nevus. So he is now taking seizure medication to hopefully stop it. They want to do another EEG after a few weeks to see how it's working.

They also want to do an MRI (he will have to be sedated for it) in 2 weeks to check for tuberous sclerosis, which can cause non-malignant tumors on the brain and other organs.

We're still trying to process everything, but I'm sure you can imagine how scary all this is for us. We're hoping and praying the medication will start working soon for his seizures. It absolutely breaks my heart when it's happening because he looks at me like "what's going on momma, make it stop." I feel like I'm failing him as his momma because I can't just kiss it and make it better. :(

So please keep my baby in your prayers.. Pray the seizures will stop, and pray the MRI will be normal.

I will post an update as soon as we know more.

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